There’s a Hole in My Bucket
Systemic scleroderma has taught me many things; some useful and interesting, and others relating to the more difficult side of life. When the ... Read more
Updates
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Specific Features of Active Disease in Juvenile Localized Scleroderma Identified in Study
Specific features of lesions associated with active disease in juvenile localized scleroderma — such as redness but not skin thickness — were identified in a ... Read more -
Men at Risk of More Severe and Active Scleroderma at Disease Onset, EUSTAR Study Shows
Men are at greater risk of more severe and active systemic sclerosis (SSc) than are women at early stages of the disease, a large ... Read more -
Skin Cancer and Other Skin Complications for People with Scleroderma
The skin is the largest organ in the body and is affected in most scleroderma patients. At the time of my diffuse scleroderma ... Read more -
My Scleroderma Sunflower Therapy
Over the past week, I have been an angry little person. I contracted my husband’s head cold, and my immune system hasn’t coped well ... Read more
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Joint Contractures, Ulcerations, Severe Raynaud’s Linked to Impaired Hand Function in Scleroderma
The presence of moderate or severe small joint contractures, finger ulcerations, and the severity ... -
New Computer-based Analysis Method Identifies Scleroderma Patients Who May Benefit Most from Stem Cell Transplant
The analysis of gene profile in blood samples may help identify scleroderma patients who ... -
#NORDSummit – Major Issues on Table for Rare Disease Patients in US as Midterm Elections Approach
With the U.S. midterm elections now less than two weeks away, patient advocacy groups ... -
Nrf2 Protein Controls Fibrosis and Autoimmunity in Scleroderma, Study Suggests
Additional evidence that the antioxidant protein Nrf2 is a key regulator of fibrosis and ... -
It’s a Simple Life with Scleroderma and Me
Life certainly is complicated, isn’t it? Over countless cups of tea with friends, I get ... -
Stem Cell Transplant Benefits in People with Severe Systemic Disease Can Be Long-lasting, Trial Extension Data Show
Stem cell transplant confers superior and long-lasting clinical benefits compared to conventional treatment with ...
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iBio Selects Fusion Protein as Lead Candidate for New Scleroderma Treatment
News
iBio has selected a lead scleroderma treatment candidate — a molecule it calls the E4-Fc fusion protein. The company plans to continue developing it, with a goal of moving it in clinical trials in people. It also hopes ... Read more