Updates

December 3, 2020December 3, 2020
Documentary ‘Beyond Breathless’ Highlights Interstitial Lung Disease

A new documentary, “Beyond Breathless,” will showcase the journey of those affected by interstitial lung disease (ILD) through the real experiences of people living ... Read more
December 2, 2020December 2, 2020
NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting

To empower and equip members of the rare disease community to engage state leaders in matters of importance to patients and their families, the ... Read more
December 1, 2020December 1, 2020
BioInvent to Produce CAN10, Cantargia’s Antibody for Scleroderma, Under New Deal

Cantargia‘s antibody CAN10, intended to treat people with scleroderma and myocarditis, will be produced by BioInvent under the terms of a new manufacturing agreement, the two companies ... Read more
November 26, 2020November 26, 2020
Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe

The first wave of COVID-19 in Europe severely disrupted access to care and raised stress and anxiety in people with rare diseases, negatively affecting their ... Read more
November 24, 2020November 24, 2020
Proteins Linked to Scarring, Immune Cell Activation Found at High Levels in dcSSc

Proteins involved in scarring and the escape of immune cells from blood vessels towards nearby tissues are found at high levels in people with ... Read more

Subscribe to our mailing list

Get regular updates delivered to your email box.

Thanks! Please check your email for a confirmation email.

March 16, 2018March 16, 2018

iBio Selects Fusion Protein as Lead Candidate for New Scleroderma Treatment

News

iBio has selected a lead scleroderma treatment candidate — a molecule it calls the E4-Fc fusion protein. The company plans to continue developing it, with a goal of moving it in clinical trials in people. It also hopes to ... Read more

Updates

Documentary ‘Beyond Breathless’ Highlights Interstitial Lung Disease

NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting

BioInvent to Produce CAN10, Cantargia’s Antibody for Scleroderma, Under New Deal

Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe

Proteins Linked to Scarring, Immune Cell Activation Found at High Levels in dcSSc

LOX Enzyme May Serve as Scleroderma Biomarker, Therapeutic Target

Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry

My Diagnosis Was Gut-wrenching, but Life Gets Better

Lenabasum Eases Pulmonary Decline in dcSSc Patients on Long-term Immunosuppressants, Trial Finds

Long-term Ofev Safely Slows Lung Function Decline in SSc-ILD Patients, Trial Data Show

Can Someone Pass Me Life’s Handbook?

Subscribe to our mailing list

Learning How to Recharge After Trauma

Ofev Slows Disease Progression in SSc-ILD, Data Shows, Supporting Therapy’s Benefits

Galectin-3 Protein May Be Blood Biomarker for Scleroderma and Like Diseases

NORD Hosting ‘RareLaunch’ Workshops to Help Start Rare Disease Non-profits

Genetic Profile Models Show Potential to Predict Person’s Scleroderma Risk

High Levels of S100A12 Protein May Increase Severity of Scarring, ILD, Study Suggests

Overall Health Benefits Found With Abatacept in dcSSc Patients After 18 Months

UK Organization ‘Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner

Machine Learning Helps Predict Stem Cell Transplant Outcomes, Study Suggests

I’m Stronger Than Scleroderma

First Patient Treated in Trial Testing FCX-013 Gene Therapy for Localized Scleroderma

Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say

Stem Cell Transplant Improves Quality of Life in Scleroderma Patients, Study Indicates

So You Wanna Talk About Mothers?

Talaris Raises $115M for Clinical Trials Testing FRC001 Cell Therapy for dcSSc

AURORA Trial of CIVI030 for Raynaud’s Due to Scleroderma Resumes Patient Enrollment

Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos

Study: Pandemic Increases Anxiety, But Not Depression, in Scleroderma Patients

Capillary.io Software Aims to Make Diagnosing Scleroderma Easier, Faster

Study Suggests TL1A Protein as Therapeutic Target for Lung Fibrosis

Scleroderma More Severe in People With Muscle Involvement, Study Finds

Bob Saget, Susan Feniger to Host Oct. 18 Cool Comedy – Hot Cuisine, Benefiting SRF

Rituximab Plus CellCept Durably Improves Lung Function in Refractory SSc-ILD, Study Suggests

Study Describes 12 Cases of Lung Cancer in Women With Scleroderma

Lenabasum Fails to Show Efficacy in Diffuse Cutaneous SSc, Phase 3 Trial Shows

iBio Selects Fusion Protein as Lead Candidate for New Scleroderma Treatment