Rare Disease Film Festival Highlights Patient and Researcher Unity
Rare disease-themed videos glowed on a large screen before an audience of people in wheelchairs, with crutches, and bearing oxygen tanks this Nov. 9 ... Read more
Updates
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Black Patients with Scleroderma Experience Faster Disease Progression and Higher Mortality than Whites and Asians, Study Finds
Black patients with scleroderma experience faster disease progression, higher prevalence of diffuse skin involvement, and higher mortality than Asian or white patients, a study ... Read more -
Younger Age, Thicker Skin at Scleroderma Onset Increase Risk of Heart Muscle Inflammation, Study Suggests
People with scleroderma who were younger and had thicker skin at the onset of their disease experience an increased risk of heart muscle (myocardial) ... Read more -
Letairis Fails To Lower PH, But Improves Cardiac Function, Blood Flow in Scleroderma, Phase 2 Trial Shows
Treatment with Letairis (ambrisentan) failed to significantly reduce pulmonary blood pressure at rest and during exercise compared with a placebo in people with ... Read more
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Skin Lesions Develop Soon After Onset of Raynaud’s Phenomenon, 10-year Follow-up Study Reports
Most people with scleroderma develop skin lesions within one year after the onset of ... -
Digital Ulcers Strongly Affect Pain and Daily Life in Scleroderma Patients, Spanish Study Finds
Digital ulcers (DUs) aggravate hand disability, limit daily activities, and affect work productivity in ... -
Real-World Data Show Safety, Efficacy of Opsumit for PAH Due to Scleroderma
Real-world clinical data support the use of Opsumit (macitentan) to treat people with pulmonary ... -
IFNL3 Gene Variant Linked to High Risk of PF in Scleroderma Patients, Study Finds
A recently discovered variant of the IFNL3 gene increases the risk of pulmonary fibrosis ... -
Wide Range of Eye Complications Associated with Scleroderma, Study Shows
People with systemic sclerosis (SSc) show a wide range of eye complications, with dry ... -
Treating Scleroderma When Neuromyelitis Optica Also Present ‘Challenging,’ Case Study Reports
People with scleroderma can develop autoimmune diseases like neuromyelitis optica (NMO), a condition that ...
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iBio Selects Fusion Protein as Lead Candidate for New Scleroderma Treatment
News
iBio has selected a lead scleroderma treatment candidate — a molecule it calls the E4-Fc fusion protein. The company plans to continue developing it, with a goal of moving it in clinical trials in people. It also hopes ... Read more