Updates

January 19, 2021January 19, 2021
Finger Sweating Tests May Help Diagnose Scleroderma

Tests that measure finger sweating levels may be useful diagnostic tools to help physicians identify people with scleroderma, a pilot study has found. Future ... Read more
January 15, 2021January 15, 2021
UK Rare Diseases Framework Opens to Improve Diagnosis, Access to Care

U.K. Rare Diseases Framework, a government-led approach to raising national awareness of rare disorders, accelerating diagnoses, and improving patient care and treatment, is now ... Read more
January 14, 2021January 14, 2021
TMB-003 Therapy to Reduce Scarring Wins FDA Orphan Drug Designation

Scleroderma treatment TMB-003, which aims to improve patients’ quality of life by reducing the scarring that characterizes the autoimmune disorder, has been granted orphan ... Read more
January 12, 2021January 12, 2021
Blood Levels of Protein Common to Lungs May Mark Progression in SSc-ILD

A glycoprotein called Krebs von den Lungen‐6 (KL-6), known to indicate lung inflammation, shows promise as a biomarker of lung tissue damage and likely disease ... Read more
January 11, 2021January 11, 2021
NORD Seeks Speakers for 2021 Virtual ‘Living Rare, Living Stronger’ Forum

The National Organization for Rare Disorders (NORD) is seeking individuals willing to share real-life experiences with rare diseases to speak at its upcoming virtual ... Read more

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March 16, 2018March 16, 2018

iBio Selects Fusion Protein as Lead Candidate for New Scleroderma Treatment

News

iBio has selected a lead scleroderma treatment candidate — a molecule it calls the E4-Fc fusion protein. The company plans to continue developing it, with a goal of moving it in clinical trials in people. It also hopes to ... Read more

Updates

Finger Sweating Tests May Help Diagnose Scleroderma

UK Rare Diseases Framework Opens to Improve Diagnosis, Access to Care

TMB-003 Therapy to Reduce Scarring Wins FDA Orphan Drug Designation

Blood Levels of Protein Common to Lungs May Mark Progression in SSc-ILD

NORD Seeks Speakers for 2021 Virtual ‘Living Rare, Living Stronger’ Forum

Analysis: Therapies Equally Effective in African Americans with SSc-ILD

Acknowledging That This Time, I Need Help

Tracleer for Digital Ulcers Lowers PH Risk in Scleroderma, Study Finds

Osteopontin Protein May Be Cause of Lung Scarring in Scleroderma

Scleroderma Patients at Higher Risk of Cardiovascular Diseases, Review Finds

Self-love Is the Best Love

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More Than 40% of Scleroderma Patients Have Bone Density Loss, Study Finds

Brain Cancer Found in 2 Immunosuppressed Scleroderma Patients, Case Series Reports

Standing By My Mother During Health Challenges

Meds or No Meds?

FDA Grants Orphan Drug Designation to ACE-1334 for Scleroderma

Documentary ‘Beyond Breathless’ Highlights Interstitial Lung Disease

NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting

BioInvent to Produce CAN10, Cantargia’s Antibody for Scleroderma, Under New Deal

Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe

Proteins Linked to Scarring, Immune Cell Activation Found at High Levels in dcSSc

LOX Enzyme May Serve as Scleroderma Biomarker, Therapeutic Target

Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry

My Diagnosis Was Gut-wrenching, but Life Gets Better

Lenabasum Eases Pulmonary Decline in dcSSc Patients on Long-term Immunosuppressants, Trial Finds

Long-term Ofev Safely Slows Lung Function Decline in SSc-ILD Patients, Trial Data Show

Can Someone Pass Me Life’s Handbook?

Learning How to Recharge After Trauma

Ofev Slows Disease Progression in SSc-ILD, Data Shows, Supporting Therapy’s Benefits

Galectin-3 Protein May Be Blood Biomarker for Scleroderma and Like Diseases

NORD Hosting ‘RareLaunch’ Workshops to Help Start Rare Disease Non-profits

Genetic Profile Models Show Potential to Predict Person’s Scleroderma Risk

High Levels of S100A12 Protein May Increase Severity of Scarring, ILD, Study Suggests

Overall Health Benefits Found With Abatacept in dcSSc Patients After 18 Months

UK Organization ‘Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner

Machine Learning Helps Predict Stem Cell Transplant Outcomes, Study Suggests

iBio Selects Fusion Protein as Lead Candidate for New Scleroderma Treatment