News Immune Cell Tilt Toward Inflammation Seen in Aging May Fuel Scleroderma, Study Says

News Study Identifies Predictors of Poor Outcome in Patients with SSc at Risk for Pulmonary Hypertension

Columns, Scleroderma and the Ordinary Girl I’m Learning to Stand Scleroderma Strong

Columns, Living The Dream October Is Raynaud’s Awareness Month

News Advocacy Groups, Doctors Question Rising Prices of Rare Disease Treatments

Columns, Scleroderma and the Ordinary Girl Can Sacred Places Be Healing Spaces?

News New US Patent Protects Corbus’ Scleroderma Therapy Until 2034

News Raynaud’s Association Campaign Aims to Raise Awareness About Disease’s Pain

Columns, Scleroderma and the Ordinary Girl Faulty Filters and Omitted Opportunities in My Treatment Plan

News Phase 1 Trial in Australia to Test Safety of Emerald’s Cannabidiol-based EHP-101  

News BTX Improves Appearance of Scleroderma ‘En Coup De Sabre’ in 2 Patients, Study Shows

Columns, Living The Dream 50 Shades of Blue

Columns, Scleroderma and the Ordinary Girl Using a Timetable to Keep My Sanity During Scleroderma’s Changes

News Cannabinoid-derived Therapies Slow Fibrosis, Block Inflammation in Scleroderma, Mouse Studies Show

News #NORDSummit – More Than 700 Expected to Attend Oct. 15-16 Rare Disease Summit in Washington

Columns, Through Teal Colored Glasses - a Column by Jessica Massengale Digestive Issues that Arise from Scleroderma

News Two Cytokines Seem to Contribute to Fibrosis, Inflammation in Scleroderma, Study Finds

News Increased Skin Pigmentation Lesions May Help Predict Course of Systemic Sclerosis, Study Suggests

Columns, Through Teal Colored Glasses - a Column by Jessica Massengale Flirting with Life and Death

News Autoantibodies in Scleroderma Patients Trigger Profibrotic and Proinflammatory Responses, Study Finds

Columns, Living The Dream I’ve Found My Own Scleroderma Tooth Fairy

News Acute Kidney Failure in Limited SSc Patient Reported in Rare Case Study

News FDA Grants Fast Track Status to Fibrocell’s Gene Therapy FCX-013 for Localized Scleroderma

News Skin High-frequency Ultrasound Can Be Used to Evaluate SSc Patients, Study Shows

News Scleroderma Foundation Names Lesley Ann Saketkoo as Doctor of the Year

Columns, Living The Dream Gastroparesis Awareness Month: Tests

Columns, Scleroderma and the Ordinary Girl The Universe Teaches Me a Valuable Lesson About My Scleroderma

News Combined Measurement of 2 New Serum Biomarkers May Speed Diagnosis of SSc-PAH Patients

News Scleroderma Patients with Renal Disease Live Longer After Kidney Transplant, Study Finds

Columns, Scleroderma and the Ordinary Girl When It Is OK to Say, ‘I Can’t’

News AdipoRon Treatment Reduces Clinical Features of Systemic Sclerosis in Mouse Model, Study Shows

News Silica Dust Exposure Linked to Higher Prevalence of Certain Systemic Sclerosis Manifestations, Study Shows

Columns, Living The Dream Bringing Awareness to Gastroparesis This Month

News Increased Heart Stiffness May Predict Worse Prognosis in Systemic Sclerosis Patients, Study Suggests

News Lupus Overlap in Scleroderma Patients Does Not Seem to Affect Survival, Study Shows

News HMGB1 Protein May Drive Blood Vessel, Tissue Damage in Scleroderma, Study Suggests

News Light Therapy Lamp Could be ‘Game-changer’ for Healing Digital Ulcers in SSc Patients

Columns, Living The Dream Get Involved in Medical Research: Take Part, Raise Awareness

Columns, Scleroderma and the Ordinary Girl Try a Little Kindness — It’s Way More Powerful than Scleroderma

News Risk Factors That May Predict Renal Crisis in Scleroderma Patients Identified in Study

News Better Markers Needed for SSc Patients with Rheumatoid Arthritis Overlap Syndrome, Study Says

News Innate Immunity Protein a Potential Therapeutic Target in Scleroderma, Study Suggests

News Targeting Key Driver of Fibrosis a Potential Therapeutic Strategy for Scleroderma, Mouse Study Suggests

Columns, Living The Dream Happy 70th Birthday to the NHS: Thank You for Keeping Me Alive

Columns, Scleroderma and the Ordinary Girl Coping with My Scleroderma Soul Fatigue

News Six-minute Walk Test Can Predict Prognosis of Systemic Sclerosis Patients, Study Suggests

News First Case of Bladder Malakoplakia in Systemic Sclerosis Patient Described in Case Report

News KL-6 Protein Can Predict Early Lung Worsening in Systemic Sclerosis with ILD, Study Says

News Cannabinoid-derived EHP-101 Eased Fibrosis in Systemic Sclerosis Mouse Model, Emerald Reports

News Variability of Pulmonary Hypertension in SSc Patients Demands Tailored Treatments, Study Argues

Columns, Scleroderma and the Ordinary Girl Finding Consistency in the Face of Scleroderma

News Specific Scleroderma Traits at Diagnosis May Predict Morbidity and Mortality, Study Shows

News MRI Has Distinct Potential to Detect Heart Problems in Scleroderma Patients, Study Suggests

News Lenabasum Continues to Show Promise for Treatment of Systemic Sclerosis in Extension Study

Columns, Living The Dream Scleroderma Awareness Raising 2018: Medical Research Investment

Columns, Scleroderma and the Ordinary Girl Grief, Scleroderma, and the Importance of a Holistic Approach

News Signaling Pathways Linked to Cancer Seen as Overly Active in Systemic Sclerosis Patients

News 85% of PAH, SSc-PAH Patients in Canada Now Have Publicly Funded Access to Uptravi

News Arm Exercises May Enhance Blood Circulation in Scleroderma Patients, Study Suggests

News Opsumit and Esbriet Combo Improves Scleroderma-related Interstitial Pneumonia and PAH, Case Report Shows

Columns, Living The Dream Scleroderma Awareness Month 2018: Unmet Clinical Needs

News Blood Levels of CD163 Protein May Be a Biomarker to Detect Systemic Sclerosis, Study Shows

Columns, Scleroderma and the Ordinary Girl My Old Dog Teaches Me a New Trick

News US ‘Right to Try’ Law Meets with Mix of Praise and Criticism, Including Among Those with Rare Diseases

News High Levels of Serum Protein CC16 Predict Lung Disease Worsening in Systemic Sclerosis

Columns, Scleroderma and the Ordinary Girl Scleroderma and Medical Cannabis for the Chronically Unwell

News PAH Confirmed as Major Cause of Death in Scleroderma Patients, Researchers Say

News #ERDC2018 – When Treating Rare Disease Patients, Don’t Overlook Quality of Life, Panel Urges

News B-cells in Skin of Scleroderma Patients May Predict Disease Progression

Columns, Through Teal Colored Glasses - a Column by Jessica Massengale 8 Useful Scleroderma Sites for Patients to Bookmark

Columns, Living The Dream Scleroderma Awareness Month: Shining a Spotlight on Our Disease This June

Columns, Scleroderma and the Ordinary Girl The Perils of Playing the Scleroderma Slot Machine

News Renal Function Normal in Systemic Sclerosis Patients Despite High Arterial Stiffness, Study Suggests

News #EULAR2018 – Lenabasum Safe and Effective in Diffuse Scleroderma Patients, One-year Trial Data Show

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News ‘Rare Impact Awards’ Dinner Marks Orphan Drug Act and NORD at 35

News #ECRD2018 – EU Must Do More for Rare Disease Patients, Eurordis Leaders Say

News Methotrexate Superior to Phototherapy in Childhood Localized Scleroderma, Study Finds

News Study Offers New Insights to Help Improve Diagnosis, Care of Juvenile Scleroderma Patients

Columns, Living The Dream New Challenges, New Activities

News Levels of Specific Cytokines Linked to Clinical Manifestations of Scleroderma, Study Reports

News Lung Transplants in Scleroderma Patients As Safe, Effective As in Other Lung Disease Patients, Study Shows

Columns, Through Teal Colored Glasses - a Column by Jessica Massengale How to Create a Skin Care Routine with Scleroderma

News #ECRD2018 – Patient Access and Collaboration Focus of Eurordis Meeting May 10-12

News Rituximab Shows Promise in Treatment of Diffuse Systemic Sclerosis, Study Finds

Columns, Scleroderma and the Ordinary Girl Managing Fatigue and Socializing with the Click of a Mouse

News Presence of Autoantibodies, Disease Subtype May Indicate Cancer Risk in Scleroderma Patients

Columns, Living The Dream Traveling with an Invisible Disability: My 2015 BSR Presentation Experience

News Iloprost Using Portable Pump More Convenient for Treating Raynaud’s, Finger Ulcers, Case Report Shows

News Venous Blood Clots Do Not Increase Mortality in Scleroderma Patients, Study Shows

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Columns, Scleroderma and the Ordinary Girl How My Teenage Son Copes with a Chronically Sick Mum

News Interstitial Lung Disease Associated with Greater Risk of Lung Cancer in Scleroderma, Study Reports

News NIH Agency Pioneers Collaborative Research into Rare Diseases

News Therapeutic Plasma Exchange Appears to Treat SSc, But Clinical Trial Needed, Study Says

Columns, Living The Dream Medical Research and Raising Awareness

News 2 Proteins Suggested as Lung Disease Biomarkers in Diffuse Systemic Sclerosis

Columns, Scleroderma and the Ordinary Girl Scleroderma Brings Me Face to Face with Myself

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News Biomarkers Can Detect Scleroderma-linked PAH and Interstitial Lung Disease, Study Reports