News Privigen Granted FDA’s Organ Drug Status to Treat Scleroderma as Phase 2 Trial Continues Enrolling Patients

News New Questionnaire Measures Effect of Digital Ulcers on Hand Function

News FDA Efforts to Bring Patients into Treatment Decisions Focus of NORD Webinar

News Study Finds Elevated Levels of Immunosuppressive HLA-G Protein in the Immune Cells of Scleroderma and Lupus Patients

News Restoring CCN3 Protein in Skin Could Improve Growth of Blood Vessels in Scleroderma, Study Suggests

News With Post-Brexit Move to Amsterdam Complete, EMA Renews Rare Disease Focus

News Impaired Swallowing Linked to Depression, Lower Quality of Life in Scleroderma, Study Finds

News Immune Dendritic Cells are Potential Therapeutic Target in Scleroderma, Mouse Study Suggests

News Localized Scleroderma Affects Quality of Life in Children, Study Finds

News Younger Age at Scleroderma Onset, Being Male Linked to Digital Ulcers, Study Reports

News Tests with Hand Function Tasks Better for Assessing Scleroderma Progression, Treatment Response, Study Finds

News Genetic Testing Can Distinguish Scleroderma and Its Overlap Syndromes, Study Suggests

News Groups of Genes Linked with Scleroderma in Different Tissues, DNA Analysis Finds

News Variant in STAT4 Gene Protects Patients Against SSc-ILD Development, Study Suggests

News Rule Out Bowel Perforation Early in Scleroderma Patients with Abdominal Symptoms, Study Advises

News FDA Paves Way for Phase 2 Testing of EHP-101 for Scleroderma

News Combined Imaging Approach Can Help Diagnose Scleroderma Earlier, Study Indicates

News Autoantibodies Linked to Genetic and Environmental Factors in Scleroderma, Study Finds

News Small Molecule Holds Promise Against Fibrosis in Scleroderma, Other Disorders, Study Suggests

News IVIG Therapy Can Help Reduce Corticosteroid Dosage for Scleroderma-associated Myopathy, Study Finds

News Servier and UCL Partner to Battle Scleroderma and Lupus

News Global Genes Awards Nearly $200K to Scleroderma Foundation, Other Rare Disease Organizations

News Cedars-Sinai Receives $20M Donation to Create Kao Autoimmunity Institute and Scleroderma Program

News Similar Symptoms Found in Scleroderma Patients in the U.S., Regardless of Their Immunosuppressant Use, Study Finds

News Cantargia Starts Development of CAN10 Antibody for Scleroderma, Myocarditis

News Galapagos Completes Enrollment in Phase 2a Trial Testing GLPG1690 in Diffuse Cutaneous Scleroderma

News HHS Secretary Alex Azar Touts White House Efforts to Cure Rare Diseases

News Bob Saget to Host Annual Cool Comedy – Hot Cuisine Event to Benefit Scleroderma Research Foundation

News Antibody CD45-ADC Shows Potential to Treat Scleroderma and Other Diseases in Mice, Study Shows

News Health Canada Approves Ofev to Help Preserve Lung Health in People with SSc-ILD

News Cardiopulmonary Exercise Testing May Help Detect PAH in Scleroderma Patients, Study Suggests

News Advanced Ultrasound of Skin May Best Determine Scleroderma Activity and Progression, Study Suggests

News Lenabasum Shows Sustained Efficacy in Patients with Diffuse Cutaneous Scleroderma, Extension Study Finds

News Rare Disease Film Festival Highlights Patient and Researcher Unity

News Black Patients with Scleroderma Experience Faster Disease Progression and Higher Mortality than Whites and Asians, Study Finds

News Ofev Slows Lung Function Decline in SSc-ILD Patients, Analysis of Phase 3 Study Shows

News Younger Age, Thicker Skin at Scleroderma Onset Increase Risk of Heart Muscle Inflammation, Study Suggests

News Letairis Fails To Lower PH, But Improves Cardiac Function, Blood Flow in Scleroderma, Phase 2 Trial Shows

News Skin Lesions Develop Soon After Onset of Raynaud’s Phenomenon, 10-year Follow-up Study Reports

News Digital Ulcers Strongly Affect Pain and Daily Life in Scleroderma Patients, Spanish Study Finds

News Real-World Data Show Safety, Efficacy of Opsumit for PAH Due to Scleroderma

News IFNL3 Gene Variant Linked to High Risk of PF in Scleroderma Patients, Study Finds

News Wide Range of Eye Complications Associated with Scleroderma, Study Shows

News Treating Scleroderma When Neuromyelitis Optica Also Present ‘Challenging,’ Case Study Reports

News Long-term Adempas May Heal Digital Ulcers in Scleroderma Patients, Phase 2 Study Finds

News One-Year Cytoxan Treatment Improves Lung Function in Scleroderma-ILD Patients, Trials Show

News Early Immunosuppressive Treatment May Prevent ILD Progression in SSc Patients, Study Suggests

News Ofev Granted FDA Breakthrough Therapy Status for Progressive Interstitial Lung Disease Treatment

News Experts Issue Recommendations for Managing Juvenile Localized Scleroderma

Columns, Scleroderma and the Ordinary Girl With Scleroderma, Exercise Comes at a Cost

News Phase 2 Study of Bermekimab in Treating Scleroderma Enrolls 1st Patient

News Estrogen Blocks Profibrotic Signals Driving Scleroderma, Study Suggests

News Raynaud’s Association Joins October Awareness Campaign, Notes Scleroderma Link

Columns, Scleroderma and the Ordinary Girl Finding the Glimmer of Gold Amid the Sludge of Scleroderma

News Modified Inflammatory Protein May Help Reverse Fibrosis in Scleroderma, Mouse Study Suggests

News NORD 2019 Rare Disease Summit Set for Oct. 21-22 in Washington, DC

News Processa Enters Agreement to Develop HT-100 as Possible Fibrotic Disease Treatment

News FDA Approves Ofev to Slow Lung Function Decline in SSc-ILD Patients

Columns, Scleroderma and the Ordinary Girl Grappling with My Identity as a Scleroderma Patient

News Problems in Small Airways Can Be Common in Scleroderma and Should Be Checked, Study Says

News ‘Disorder’ Film Festival Offers Look at Siblings Touched by Rare Diseases

News At NY Genome Center, Legal Expert Presents Ethical Dilemmas in Gene Editing

News Potential Cannabidiol Treatment EHP-101 Shows Safety in Early Trial, Study in Scleroderma Patients Being Readied

News Newer EUSTAR-AI Scale Ably Predicts Short-term Risk of SSc Progression, Study Finds

News Vasodilators and Aspirin May Protect Hearts of Systemic Scleroderma Patients, Study Suggests

News Uric Acid Levels in Blood Predicts PAH Risk and Outcomes in Scleroderma Patients, Study Reports

Columns, Scleroderma and the Ordinary Girl When Choosing My Medical Team, It’s All About Attitude

News Patient-reported Symptoms May Reflect Changes in SSc Activity, Study Suggests

News Nebraska’s Neena Nizar Seeks Cure for Jansen’s, One of World’s Rarest Diseases

News Close Monitoring Needed for SSc Patients With Rare Type of Interstitial Lung Disease, Study Shows

News Sarcopenia May Affect up to 55% of Patients with SSc, Study Suggests

News High Levels of IL-6 Correlate with More Severe Skin Disease in SSc, Study Shows

News Antibody Response Against HCMV Could Drive Scleroderma, Study Finds

Columns, Scleroderma and the Ordinary Girl Finding Hope in the Hospital Despite Adversity

News ACE Inhibitors Raise Risk of Renal Crisis in Some SSc Patients, Study Says

News Specific Autoantibody Protects Some SSc Patients Against Cancer, Study Suggests

News Rare Disease Groups Seek Public Support to Renew Newborn Screening Act in Senate

News Oklahoma Ranks Lowest on Programs Key to Rare Diseases on NORD’s 2019 State Report Card

News Abatacept Improves Overall Health in dcSSc, but Fails To Reduce Skin Thickening, Study Finds

News FDA Advisory Committee Recommends Ofev Approval for Treatment of Interstitial Lung Disease

News Some dcSSC Patients’ Skin Issues Returned after Reducing or Ending CellCept, Study Says

News Blood Levels of Certain Immune Cells May be Linked to Disease Severity in Systemic Sclerosis, Study Says

Columns, Scleroderma and the Ordinary Girl Puzzles Enable Me to ‘Armchair Travel’ with Scleroderma

News Lipotransfer Improves Mouth Function, Appearance, Quality of Life, Study Says

News More Accurate Way of Detecting Lung Disease Early in Scleroderma Patients Using HRCT Scans Proposed

News European Initiative Targets Diagnosis, Treatment of Rare Diseases

News Rituximab’s Immunosuppressive Effects Go Beyond B Cells in SSc, Study Finds

Columns, Scleroderma and the Ordinary Girl Navigating the Uncharted Waters of Scleroderma

News Lung Function Test May Offer Non-invasive Way to Detect Early PAH in SSc Patients

News First SSc Patient Dosed with Investigational Inhibitor KD025 in Phase 2 Trial

News Older Males Using Opioids, With Muscle Disease, at Higher Risk for Pseudo-obstructions, Study Reports

News Different SSc-specific Autoantibodies May Dictate Disease’s Presentation

News World’s First Alport Stamp Is Macedonian Mom’s Latest Win for Rare Disease Patients

News Levels of Two Blood Proteins Predict Course of ILD in SSc, Data Suggest

Columns, Scleroderma and the Ordinary Girl Is a ‘Normal Life’ Possible with Scleroderma?

News Study Identifies Factors that Put Patients with Scleroderma at Risk for Organ Damage

News Anti-cancer Therapy May Help Fight Inflammation in SSc Patients, Data Suggest

News NORD Honors Industry, Patient Advocates at Rare Impact Awards Gala

News Hyaluronidase Eased SSc Patient’s Problems with Eating, Dental Care, Report Says

News Eurordis Unveils Integrated-care Initiative for Rare Disease Patients