My Trauma-related Scleroderma Puzzle: How Does It Fit Together?
Burnout is often used to describe what can happen to those living with constant stress, resulting in complete physical, emotional, and spiritual exhaustion. A ... Read more
Updates
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Systemic Sclerosis Patients Have Deregulated Levels of Skin Microorganisms, Study Shows
Deregulation of the microorganisms that naturally populate the skin is associated with increased inflammation and disease duration in patients with systemic sclerosis, a study ... Read more -
Arrhythmia Linked to Fibrosis in Asymptomatic Patients with Scleroderma, Study Suggests
A device designed to continuously record heart rhythm showed that asymptomatic patients with scleroderma have significant arrhythmia, according to a pilot study. Findings also suggested ... Read more -
Welcoming Kindness Creates Space for Healing
I had to travel to another part of the country last week. The outing was unplanned, but I’m never one to turn down a ... Read more -
Inhibiting PU.1 Protein May Hold Promise for Treating Fibrotic Diseases, Including Systemic Sclerosis
Inhibiting the protein PU.1 has potential as a therapy to treat multiple fibrotic diseases, including systemic sclerosis, a new study contends. The study reporting ... Read more
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Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide
Scores of events are afoot worldwide to mark Feb. 28, Rare Disease Day 2019. The activities ... -
sE-selectin, sIL-2R Levels Are Potential Markers of Localized Scleroderma Activity
Serum levels of E-selectin (sE-selectin) and soluble interleukin-2 receptor (sIL-2R) are potential prognostic markers ... -
I’m Bursting the Scleroderma Boredom Bubble
The chronically unwell face plenty of daily challenges, some big and some small. But ... -
SSc Patients Show Improvements After CD34-selected Stem Cell Transplant, Study Reports
Systemic sclerosis (SSc) patients showed reduced skin thickness and improved lung function after a ... -
Clinical Signs of Interstitial Lung Disease in Systemic Sclerosis Patients Identified, Study Reports
Certain clinical characteristics that researchers suggest could be potentially useful indicators of interstitial lung ... -
Celebrating the Bravery of All Scleroderma Warriors
It’s the middle of summer here in New Zealand. Today the temperature reached 91 ...
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iBio Selects Fusion Protein as Lead Candidate for New Scleroderma Treatment
News
iBio has selected a lead scleroderma treatment candidate — a molecule it calls the E4-Fc fusion protein. The company plans to continue developing it, with a goal of moving it in clinical trials in people. It also hopes ... Read more