Updates

September 18, 2018September 18, 2018
Increased Skin Pigmentation Lesions May Help Predict Course of Systemic Sclerosis, Study Suggests

Evaluating changes in skin pigmentation could be useful for the management of systemic sclerosis (SSc) patients, particularly to identify those at risk of developing ... Read more
September 13, 2018September 11, 2018
Flirting with Life and Death

Life is an enigma; a beautifully twisted maze that evolves daily around us. Some individuals have a pretty good idea of how to find ... Read more
September 13, 2018September 13, 2018
Autoantibodies in Scleroderma Patients Trigger Profibrotic and Proinflammatory Responses, Study Finds

Autoreactive antibodies, or autoantibodies, were detected in the blood of patients with scleroderma (also called systemic sclerosis, or SSc) and shown to trigger proinflammatory ... Read more
September 12, 2018September 10, 2018
I’ve Found My Own Scleroderma Tooth Fairy

Here in the Northern Hemisphere, the summer holidays have finished. However, as scleroderma patients, we know all too well that we do not have ... Read more
September 11, 2018September 11, 2018
Acute Kidney Failure in Limited SSc Patient Reported in Rare Case Study

A case of acute renal crisis was reported in a patient with limited cutaneous systemic sclerosis (SSc) positive for anticentromere autoantibodies. This rare ... Read more

News

FDA Grants Fast Track Status to Fibrocell’s Gene Therapy FCX-013 for Localized Scleroderma
September 6, 2018September 6, 2018
Fibrocell Science‘s gene therapy candidate FCX-013 received fast track designation by the U.S. Food and ...
News

Skin High-frequency Ultrasound Can Be Used to Evaluate SSc Patients, Study Shows
September 4, 2018September 4, 2018
High-frequency ultrasound (HFU) of the skin can help evaluate the progression and define disease ...
News

Scleroderma Foundation Names Lesley Ann Saketkoo as Doctor of the Year
August 30, 2018August 30, 2018
The Scleroderma Foundation has named Lesley Ann Saketkoo, MD, as Doctor of the Year. This ...
Columns, Living The Dream

Gastroparesis Awareness Month: Tests
August 29, 2018August 27, 2018
August is Gastroparesis Awareness Month. In this column, I highlight some of the tests ...
Columns, Scleroderma and the Ordinary Girl

The Universe Teaches Me a Valuable Lesson About My Scleroderma
August 28, 2018August 27, 2018
Continual flare–ups have been a huge challenge for me over the past few months. ...
News

Combined Measurement of 2 New Serum Biomarkers May Speed Diagnosis of SSc-PAH Patients
August 28, 2018August 28, 2018
Patients with scleroderma and pulmonary arterial hypertension (PAH) have increased levels of two serum ...

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Scleroderma Patients with Renal Disease Live Longer After Kidney Transplant, Study Finds
August 23, 2018August 23, 2018
A European Union study found that patients with end-stage renal disease (ESRD) due to scleroderma ...
When It Is OK to Say, ‘I Can’t’
August 21, 2018August 20, 2018
There is a phrase that gets me going every time it is offered up ...
AdipoRon Treatment Reduces Clinical Features of Systemic Sclerosis in Mouse Model, Study Shows
August 21, 2018August 21, 2018
Silica Dust Exposure Linked to Higher Prevalence of Certain Systemic Sclerosis Manifestations, Study Shows
August 16, 2018August 16, 2018
Bringing Awareness to Gastroparesis This Month
August 15, 2018August 14, 2018
Increased Heart Stiffness May Predict Worse Prognosis in Systemic Sclerosis Patients, Study Suggests
August 14, 2018August 14, 2018

Lupus Overlap in Scleroderma Patients Does Not Seem to Affect Survival, Study Shows
August 9, 2018August 9, 2018
Patients with both scleroderma and systemic lupus erythematosus (SLE) are younger at diagnosis, are ...
HMGB1 Protein May Drive Blood Vessel, Tissue Damage in Scleroderma, Study Suggests
August 7, 2018August 7, 2018
Light Therapy Lamp Could be ‘Game-changer’ for Healing Digital Ulcers in SSc Patients
August 2, 2018August 2, 2018
Get Involved in Medical Research: Take Part, Raise Awareness
August 1, 2018July 30, 2018

Try a Little Kindness — It’s Way More Powerful than Scleroderma
July 31, 2018July 27, 2018
It was Wednesday again, the dreaded supermarket day. The weekly shopping trip is a ...
Risk Factors That May Predict Renal Crisis in Scleroderma Patients Identified in Study
July 31, 2018July 31, 2018
Better Markers Needed for SSc Patients with Rheumatoid Arthritis Overlap Syndrome, Study Says
July 26, 2018July 26, 2018

News

Innate Immunity Protein a Potential Therapeutic Target in Scleroderma, Study Suggests
July 24, 2018July 24, 2018
A key innate immunity protein called TLR4 is a key driver of organ fibrosis, ...
News

Targeting Key Driver of Fibrosis a Potential Therapeutic Strategy for Scleroderma, Mouse Study Suggests
July 19, 2018July 19, 2018
A protein called BAFF, or B-cell activating factor, was found to drive skin and ...
Columns, Living The Dream

Happy 70th Birthday to the NHS: Thank You for Keeping Me Alive
July 18, 2018July 16, 2018
On July 5, 2018, over here in the United Kingdom, the National Health Service ...
Columns, Scleroderma and the Ordinary Girl

Coping with My Scleroderma Soul Fatigue
July 17, 2018July 16, 2018
Not so many years ago, around the time of my diagnosis, I recall having ...
News

Six-minute Walk Test Can Predict Prognosis of Systemic Sclerosis Patients, Study Suggests
July 17, 2018July 17, 2018
A lower score on the six-minute walk test (6MWT) correlates with disease severity and ...
News

First Case of Bladder Malakoplakia in Systemic Sclerosis Patient Described in Case Report
July 12, 2018July 12, 2018
Malakoplakia, a rare granulomatous disorder, was reported for the first time in a patient ...
News

KL-6 Protein Can Predict Early Lung Worsening in Systemic Sclerosis with ILD, Study Says
July 10, 2018July 10, 2018
High levels of a protein called KL-6, produced by lung cells and secreted into ...
News

Cannabinoid-derived EHP-101 Eased Fibrosis in Systemic Sclerosis Mouse Model, Emerald Reports
July 5, 2018July 5, 2018
Emerald Health Pharmaceuticals’ lead cannabinoid-derived treatment candidate, EHP-101, has shown potential to prevent skin and ...
News

Variability of Pulmonary Hypertension in SSc Patients Demands Tailored Treatments, Study Argues
July 3, 2018July 3, 2018
Considerable differences in features of pulmonary hypertension among people with systemic sclerosis (SSc) markedly ...
Columns, Scleroderma and the Ordinary Girl

Finding Consistency in the Face of Scleroderma
July 3, 2018June 29, 2018
I think I have been stuck in some kind of time warp. Either that ...
News

Specific Scleroderma Traits at Diagnosis May Predict Morbidity and Mortality, Study Shows
June 28, 2018June 28, 2018
Specific traits at the time of diagnosis, including symptoms and lung function status, may ...
News

MRI Has Distinct Potential to Detect Heart Problems in Scleroderma Patients, Study Suggests
June 26, 2018June 26, 2018
Magnetic resonance imaging (MRI), a medical technique used to form detailed pictures of the ...

March 16, 2018March 16, 2018

iBio Selects Fusion Protein as Lead Candidate for New Scleroderma Treatment

News

iBio has selected a lead scleroderma treatment candidate — a molecule it calls the E4-Fc fusion protein. The company plans to continue developing it, with a goal of moving it in clinical trials in people. It also hopes ... Read more

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