Silver Bells and Silver Linings
Here in New Zealand, the festive season is upon us. Your average Kiwi Christmas in the Down Under is vastly different from holiday celebrations in ... Read more
Updates
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Fat-targeting Autoantibodies Linked to Increased Risk of Blood Clots, Miscarriage in Scleroderma Patients
Autoantibodies against fat molecules present in the membrane of cells, called antiphospholipid antibodies, are associated with an increased risk of blood clots and miscarriage ... Read more -
TAK242 Prevents and Reverses Fibrosis in Mice, Could Be Potential Scleroderma Therapy, Study Suggests
Inhibiting a key innate immunity protein known as TLR4 with a compound called TAK242 prevented and reversed skin and lung fibrosis (scarring) in mouse ... Read more -
‘Celebrating’ 20 Years of Being a Patient at the Scleroderma Unit
This week, I am celebrating my 20th year since first dragging my “tin-man” body to the Scleroderma Unit at the Royal Free Hospital in ... Read more -
I’m Getting Real About Scleroderma
I’m horrified to discover that I’ve been keeping a secret from myself, locked away in my subconscious. It has to do with my scleroderma ... Read more
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Pulmonary Arterial Hypertension Is Main Cause of Death in SSc Patients, According to Study
Pulmonary arterial hypertension (PAH) is the main cause of death among systemic sclerosis (SSc) ... -
High Levels of Pro-Inflammatory CX3CL1 Linked to Lung Fibrosis in Scleroderma Patients
High levels of CX3CL1, a pro-inflammatory molecule, in the lung tissue and blood are linked with ... -
My Routines Help Me to Feel in Control Despite ‘Random’ Scleroderma
Scleroderma is a pretty “random” disease. I think the word “random” sums it up ... -
Rate of Decline in ILD Better Predicts Survival in SSc than Baseline Severity, Researchers Say
A recent study found that short-term progression rate of interstitial lung disease (ILD) in ... -
A Look Back at My Scleroderma Treatments Over the Years
At the start of December, I will be celebrating my 20th year since first ... -
This Little Light of Mine
At times, I can become really despondent when I see the changes that scleroderma ...
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iBio Selects Fusion Protein as Lead Candidate for New Scleroderma Treatment
News
iBio has selected a lead scleroderma treatment candidate — a molecule it calls the E4-Fc fusion protein. The company plans to continue developing it, with a goal of moving it in clinical trials in people. It also hopes ... Read more