News Poor SSc-PH-ILD Prognosis May be Linked to Pulmonary Veno-occlusive Disease

News Brexit Could ‘Devastate’ UK Rare Disease Patients, Experts Warn

News Moral Dilemmas Complicate Treatment of Rare Diseases, Says Israeli Bioethicist

News First Patient Dosed in Ongoing Trial to Test AVID200 for Diffuse Cutaneous Systemic Sclerosis

Columns, Scleroderma and the Ordinary Girl Exercising with Scleroderma My Way

News NIH Rare Disease Day Highlights Joint Networks Advancing Array of Research

News SSc Patients’ Health-related Quality of Life Worse Than Those With Other Rheumatoid Diseases, Study Finds

Columns, Scleroderma and the Ordinary Girl Staying One Step Ahead of Scleroderma

News Study Results Prompt Inventiva to End Development of Lanifibranor for Scleroderma

News WODC 2019 Organizers Expect 1,200 to Attend Rare Disease Conference in April

News Vienna to Host RARE2019 Meeting on Rare Diseases

News Enzyme in Skin and Blood Vessel Cells May Offer Way of Treating Scleroderma, Study Reports

Columns, Scleroderma and the Ordinary Girl My Trauma-related Scleroderma Puzzle: How Does It Fit Together?

News Systemic Sclerosis Patients Have Deregulated Levels of Skin Microorganisms, Study Shows

News Arrhythmia Linked to Fibrosis in Asymptomatic Patients with Scleroderma, Study Suggests

Columns, Scleroderma and the Ordinary Girl Welcoming Kindness Creates Space for Healing

News Inhibiting PU.1 Protein May Hold Promise for Treating Fibrotic Diseases, Including Systemic Sclerosis

News Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide

News sE-selectin, sIL-2R Levels Are Potential Markers of Localized Scleroderma Activity

Columns, Scleroderma and the Ordinary Girl I’m Bursting the Scleroderma Boredom Bubble

News SSc Patients Show Improvements After CD34-selected Stem Cell Transplant, Study Reports

News Clinical Signs of Interstitial Lung Disease in Systemic Sclerosis Patients Identified, Study Reports

Columns, Scleroderma and the Ordinary Girl Celebrating the Bravery of All Scleroderma Warriors

News Rituximab May Alleviate Calcinosis Symptoms in Some Scleroderma Patients, Small Study Shows

News Gene Profile May Help Distinguish PAH from ILD in SSc Patients, Study Suggests

Columns, Scleroderma and the Ordinary Girl Seeking a Second Opinion About My Systemic Scleroderma

News In UK, Juvenile Localized Scleroderma Screening Varies but Treatment Consistent, Study Finds

News New Blood Test Measures Scleroderma Biomarker Linked to Gastrointestinal Issues and Pulmonary Hypertension

News Plant-derived Compound May Treat Skin Fibrosis in Scleroderma, Study Suggests

News Phase 2a Trial Will Evaluate GLPG1690 in Diffuse Cutaneous Scleroderma

Columns, Living The Dream A New Year and New Challenges

Columns, Scleroderma and the Ordinary Girl Is It Possible to Have Fun When You’re in Pain?

News Researchers Target IGFBP-5 Protein in Search for Lung Fibrosis Therapies

Columns, Scleroderma and the Ordinary Girl Graduations, Elephants, and Christmas Blessings

News Rising Healthcare Costs Strain EU Budgets Even as New Therapies Flourish

News Rituximab Stabilizes Blood Circulation in Small Vessels in Systemic Sclerosis Patients, Study Shows

Columns, Living The Dream Christmas Wishes and a New Year to Celebrate

News SSc Patients at Risk of Developing Wrist Nerve Damage, Study Suggests

News Pacemaker May Be Necessary in SSc Patients With Complete Heart Block, Case Report Suggests

Columns, Scleroderma and the Ordinary Girl Silver Bells and Silver Linings

News Fat-targeting Autoantibodies Linked to Increased Risk of Blood Clots, Miscarriage in Scleroderma Patients

News TAK242 Prevents and Reverses Fibrosis in Mice, Could Be Potential Scleroderma Therapy, Study Suggests

Columns, Living The Dream ‘Celebrating’ 20 Years of Being a Patient at the Scleroderma Unit

Columns, Scleroderma and the Ordinary Girl I’m Getting Real About Scleroderma

News Pulmonary Arterial Hypertension Is Main Cause of Death in SSc Patients, According to Study

News High Levels of Pro-Inflammatory CX3CL1 Linked to Lung Fibrosis in Scleroderma Patients

Columns, Scleroderma and the Ordinary Girl My Routines Help Me to Feel in Control Despite ‘Random’ Scleroderma

News Rate of Decline in ILD Better Predicts Survival in SSc than Baseline Severity, Researchers Say

Columns, Living The Dream A Look Back at My Scleroderma Treatments Over the Years

Columns, Scleroderma and the Ordinary Girl This Little Light of Mine

News Non-invasive Ozone Therapy Shows Effectiveness in Treating Digital Ulcers

News FAM111B Gene Mutations Not Associated with Scleroderma, Study Finds

Columns, Scleroderma and the Ordinary Girl There’s a Hole in My Bucket

News Specific Features of Active Disease in Juvenile Localized Scleroderma Identified in Study

News Men at Risk of More Severe and Active Scleroderma at Disease Onset, EUSTAR Study Shows

Columns, Living The Dream Skin Cancer and Other Skin Complications for People with Scleroderma

Columns, Scleroderma and the Ordinary Girl My Scleroderma Sunflower Therapy

News Joint Contractures, Ulcerations, Severe Raynaud’s Linked to Impaired Hand Function in Scleroderma

News New Computer-based Analysis Method Identifies Scleroderma Patients Who May Benefit Most from Stem Cell Transplant

News #NORDSummit – Major Issues on Table for Rare Disease Patients in US as Midterm Elections Approach

News Nrf2 Protein Controls Fibrosis and Autoimmunity in Scleroderma, Study Suggests

Columns, Scleroderma and the Ordinary Girl It’s a Simple Life with Scleroderma and Me

News Stem Cell Transplant Benefits in People with Severe Systemic Disease Can Be Long-lasting, Trial Extension Data Show

Columns, Living The Dream Looking Back on This Year’s Invisible Disabilities Week

Columns, Scleroderma and the Ordinary Girl Scleroderma Penetrates My Dreams

News CD248 Plays Central Role in Fibrosis Development in Systemic Sclerosis Patients, Study Suggests

News Immune Cell Tilt Toward Inflammation Seen in Aging May Fuel Scleroderma, Study Says

News Study Identifies Predictors of Poor Outcome in Patients with SSc at Risk for Pulmonary Hypertension

Columns, Scleroderma and the Ordinary Girl I’m Learning to Stand Scleroderma Strong

Columns, Living The Dream October Is Raynaud’s Awareness Month

News Advocacy Groups, Doctors Question Rising Prices of Rare Disease Treatments

Columns, Scleroderma and the Ordinary Girl Can Sacred Places Be Healing Spaces?

News New US Patent Protects Corbus’ Scleroderma Therapy Until 2034

News Raynaud’s Association Campaign Aims to Raise Awareness About Disease’s Pain

Columns, Scleroderma and the Ordinary Girl Faulty Filters and Omitted Opportunities in My Treatment Plan

News Phase 1 Trial in Australia to Test Safety of Emerald’s Cannabidiol-based EHP-101  

News BTX Improves Appearance of Scleroderma ‘En Coup De Sabre’ in 2 Patients, Study Shows

Columns, Living The Dream 50 Shades of Blue

Columns, Scleroderma and the Ordinary Girl Using a Timetable to Keep My Sanity During Scleroderma’s Changes

News Cannabinoid-derived Therapies Slow Fibrosis, Block Inflammation in Scleroderma, Mouse Studies Show

News #NORDSummit – More Than 700 Expected to Attend Oct. 15-16 Rare Disease Summit in Washington

Columns, Through Teal Colored Glasses - a Column by Jessica Massengale Digestive Issues that Arise from Scleroderma

News Two Cytokines Seem to Contribute to Fibrosis, Inflammation in Scleroderma, Study Finds

News Increased Skin Pigmentation Lesions May Help Predict Course of Systemic Sclerosis, Study Suggests

Columns, Through Teal Colored Glasses - a Column by Jessica Massengale Flirting with Life and Death

News Autoantibodies in Scleroderma Patients Trigger Profibrotic and Proinflammatory Responses, Study Finds

Columns, Living The Dream I’ve Found My Own Scleroderma Tooth Fairy

News Acute Kidney Failure in Limited SSc Patient Reported in Rare Case Study

News FDA Grants Fast Track Status to Fibrocell’s Gene Therapy FCX-013 for Localized Scleroderma

News Skin High-frequency Ultrasound Can Be Used to Evaluate SSc Patients, Study Shows

News Scleroderma Foundation Names Lesley Ann Saketkoo as Doctor of the Year

Columns, Living The Dream Gastroparesis Awareness Month: Tests

Columns, Scleroderma and the Ordinary Girl The Universe Teaches Me a Valuable Lesson About My Scleroderma

News Combined Measurement of 2 New Serum Biomarkers May Speed Diagnosis of SSc-PAH Patients

News Scleroderma Patients with Renal Disease Live Longer After Kidney Transplant, Study Finds

Columns, Scleroderma and the Ordinary Girl When It Is OK to Say, ‘I Can’t’

News AdipoRon Treatment Reduces Clinical Features of Systemic Sclerosis in Mouse Model, Study Shows

News Silica Dust Exposure Linked to Higher Prevalence of Certain Systemic Sclerosis Manifestations, Study Shows

Columns, Living The Dream Bringing Awareness to Gastroparesis This Month

News Increased Heart Stiffness May Predict Worse Prognosis in Systemic Sclerosis Patients, Study Suggests