April 19, 2018April 19, 2018

Venous Blood Clots Do Not Increase Mortality in Scleroderma Patients, Study Shows

News

The occurrence of blood clots in the veins of scleroderma patients is rare and does not change patients’ survival rates, a new Canadian study shows. Still, researchers see a need ... Read more

April 19, 2018April 18, 2018

These Tests Help Monitor My Scleroderma Progression

Columns, Through Teal Colored Glasses - a Column by Jessica Massengale

Some people go through life miraculously dodging any form of illness or disease. They go to the doctor for their physical once a year and don’t return until the ... Read more

April 17, 2018April 16, 2018

How My Teenage Son Copes with a Chronically Sick Mum

Columns, Scleroderma and the Ordinary Girl

As a chronically unwell parent, I am aware of the many complicating issues scleroderma has introduced into our family life. I have been especially worried about our son Jack, ... Read more

April 17, 2018April 17, 2018

Interstitial Lung Disease Associated with Greater Risk of Lung Cancer in Scleroderma, Study Reports

News

Having interstitial lung disease (ILD) is associated with a greater risk of lung cancer in scleroderma patients, according to Canadian researchers. Their findings also demonstrate that male sex and ... Read more

April 13, 2018April 13, 2018

NIH Agency Pioneers Collaborative Research into Rare Diseases

News

A little-known government entity within the National Institutes of Health (NIH) is helping to lead U.S. efforts to speed up the development of therapies for some 7,000 rare diseases. ... Read more

April 12, 2018April 12, 2018

Therapeutic Plasma Exchange Appears to Treat SSc, But Clinical Trial Needed, Study Says

News

Therapeutic plasma exchange, which aims to treat systemic sclerosis (SSc) by clearing the blood of antibodies, cytokines and other factors that might promote disease progression, shows potential as a ... Read more

April 11, 2018April 10, 2018

Medical Research and Raising Awareness

Columns, Living The Dream

Spring has reluctantly arrived over here in the United Kingdom. An increase in the temperature is most welcome, even if it is only marginal due to my location. To ... Read more

April 10, 2018April 10, 2018

2 Proteins Suggested as Lung Disease Biomarkers in Diffuse Systemic Sclerosis

News

Increased levels of two proteins produced during acute inflammation can help predict pulmonary involvement in patients with diffuse systemic sclerosis, a study shows. Patients with diffuse systemic sclerosis who ... Read more

April 10, 2018April 10, 2018

Scleroderma Brings Me Face to Face with Myself

Columns, Scleroderma and the Ordinary Girl

Since becoming chronically unwell five years ago with systemic scleroderma, I had to quit my job. As my husband and friends work during the week, I spend more and ... Read more

April 5, 2018April 3, 2018

Feeling Young and Old at the Same Time

Columns, Through Teal Colored Glasses - a Column by Jessica Massengale

Aging is a beautiful journey that is viewed differently in every culture. Some cultures embrace the elderly and look up to them for knowledge and wisdom. Others may place ... Read more

April 5, 2018April 5, 2018

Biomarkers Can Detect Scleroderma-linked PAH and Interstitial Lung Disease, Study Reports

News

Changes in gene expression occur early in scleroderma patients with pulmonary arterial hypertension or interstitial lung disease, which means that a collection of biomarkers can be used to detect ... Read more

April 3, 2018April 2, 2018

A ‘Note-worthy’ Way to Help Treat My Systemic Scleroderma

Columns, Scleroderma and the Ordinary Girl

Being chronically unwell wears me down. I find that it is hard work to get through so many complications on most days. I am not referring only to pain and ... Read more