News Hyaluronidase Eased SSc Patient’s Problems with Eating, Dental Care, Report Says

News Eurordis Unveils Integrated-care Initiative for Rare Disease Patients

News Pirfenidone Fails to Improve Lung Function in SSc Patients with ILD, Trial Shows

Columns, Scleroderma and the Ordinary Girl How I’m Surviving My Worst Waiting Room

News ‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy

News High Blood Viscosity Can Help Identify SSc Patients at Risk of PAH, Study Suggests

News Lenabasum Promotes Sustained Improvements in Systemic Sclerosis Patients, Extension Study Shows

News Study Links Higher Estrogen Levels, More Severe dcSSc in Older Men

News Blocking Specific ‘Signaling Molecule’ Seen to Ease Inflammation, Scarring in Early Study

News NIH Grants $10.2M to Find New Therapies for Autoimmune Diseases, Including Scleroderma

News Mortality Rates in SSc Remain Unchanged, But Still High, Researchers Say

News IL-1 Cytokines May Play Distinct Roles in Scleroderma, Study Says

News ‘Stepping Out to Cure Scleroderma’ Fundraiser Set for June 15 in Colorado

Columns, Scleroderma and the Ordinary Girl My Scleroderma Seminar Trip Was Just What the Doctor Ordered

News Agency Unveils RaDaR to Help Patient Groups Develop Rare Disease Registries

News Ofev Delays Lung Function Decline in SSc-ILD, Reaches SENSCIS Trial Goal, Results Show

News Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns

News Enrollment Complete in Phase 3 Trial Testing Lenabasum in Diffuse Cutaneous SSc Patients

Columns, Scleroderma and the Ordinary Girl Being Labeled a Fraud Is My Most Pressing Scleroderma Fear

News PF Combined with Emphysema Decreases Survival Rates of Systemic Sclerosis Patients, Data Analysis Shows

News PALS Uplifts the Spirits of Rare-Disease Patients by Offering Free Flights

Columns, Scleroderma and the Ordinary Girl Telangiectasia, Tiger Lilies, and Traditions

News Corbus Changes Goal of Phase 3 Lenabasum Trial in Diffuse Cutaneous SSc, Sees as Step to Possible ‘Success’

News DEA Clears Cannabinoid-derived Active Ingredient in Investigational Scleroderma Therapy EHP-101

Columns, Scleroderma and the Ordinary Girl Self-talking My Way Through My Scleroderma

News Rituximab Safe, Eases Skin Fibrosis in Systemic Sclerosis Patients, Study Suggests

News Epigenetic Changes May Be Involved in Scleroderma Development, Study Says

News Star-studded Scleroderma Fundraiser ‘Cool Comedy – Hot Cuisine’ Set for April 25 in Beverly Hills

News Estradiol Could Be Key Therapeutic Target Against dcSSc, Study Suggests

News Blood Test May Help Identify Systemic Sclerosis Patients at Risk of Poor Outcomes, Study Suggests

Columns, Scleroderma and the Ordinary Girl Times of Stress Demand that I Create Space to Heal

News TLY012 Fares Well in Mouse Model as Potential Treatment for Scleroderma

News 52% of SSc Patients Have Autoantibodies Years Before Diagnosis, Study Finds

Columns, Scleroderma and the Ordinary Girl Surviving Scleroderma Amid Chaos in My Hometown

News Skin Fibrosis Scores Can Be Surrogate Marker for dcSSc Severity, Study Finds

News Systemic Sclerosis Not Linked to Problems with Exocrine Pancreas, Which Carries Malnutrition Risk, Study Finds

News ANCA Autoantibodies Associated with Worse Prognosis for Scleroderma Patients, Study Reports

News EHP-101 Prevents Blood Vessel Damage, Reduces Fibrosis and Inflammation, Mouse Study Determines

News Nintedanib Submitted for Regulatory Approval to Treat SSc-ILD in US and Europe

News Poor SSc-PH-ILD Prognosis May be Linked to Pulmonary Veno-occlusive Disease

News Brexit Could ‘Devastate’ UK Rare Disease Patients, Experts Warn

News Moral Dilemmas Complicate Treatment of Rare Diseases, Says Israeli Bioethicist

News First Patient Dosed in Ongoing Trial to Test AVID200 for Diffuse Cutaneous Systemic Sclerosis

Columns, Scleroderma and the Ordinary Girl Exercising with Scleroderma My Way

News NIH Rare Disease Day Highlights Joint Networks Advancing Array of Research

News SSc Patients’ Health-related Quality of Life Worse Than Those With Other Rheumatoid Diseases, Study Finds

Columns, Scleroderma and the Ordinary Girl Staying One Step Ahead of Scleroderma

News Study Results Prompt Inventiva to End Development of Lanifibranor for Scleroderma

News WODC 2019 Organizers Expect 1,200 to Attend Rare Disease Conference in April

News Vienna to Host RARE2019 Meeting on Rare Diseases

News Enzyme in Skin and Blood Vessel Cells May Offer Way of Treating Scleroderma, Study Reports

Columns, Scleroderma and the Ordinary Girl My Trauma-related Scleroderma Puzzle: How Does It Fit Together?

News Systemic Sclerosis Patients Have Deregulated Levels of Skin Microorganisms, Study Shows

News Arrhythmia Linked to Fibrosis in Asymptomatic Patients with Scleroderma, Study Suggests

Columns, Scleroderma and the Ordinary Girl Welcoming Kindness Creates Space for Healing

News Inhibiting PU.1 Protein May Hold Promise for Treating Fibrotic Diseases, Including Systemic Sclerosis

News Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide

News sE-selectin, sIL-2R Levels Are Potential Markers of Localized Scleroderma Activity

Columns, Scleroderma and the Ordinary Girl I’m Bursting the Scleroderma Boredom Bubble

News SSc Patients Show Improvements After CD34-selected Stem Cell Transplant, Study Reports

News Clinical Signs of Interstitial Lung Disease in Systemic Sclerosis Patients Identified, Study Reports

Columns, Scleroderma and the Ordinary Girl Celebrating the Bravery of All Scleroderma Warriors

News Rituximab May Alleviate Calcinosis Symptoms in Some Scleroderma Patients, Small Study Shows

News Gene Profile May Help Distinguish PAH from ILD in SSc Patients, Study Suggests

Columns, Scleroderma and the Ordinary Girl Seeking a Second Opinion About My Systemic Scleroderma

News In UK, Juvenile Localized Scleroderma Screening Varies but Treatment Consistent, Study Finds

News New Blood Test Measures Scleroderma Biomarker Linked to Gastrointestinal Issues and Pulmonary Hypertension

News Plant-derived Compound May Treat Skin Fibrosis in Scleroderma, Study Suggests

News Phase 2a Trial Will Evaluate GLPG1690 in Diffuse Cutaneous Scleroderma

Columns, Living The Dream A New Year and New Challenges

Columns, Scleroderma and the Ordinary Girl Is It Possible to Have Fun When You’re in Pain?

News Researchers Target IGFBP-5 Protein in Search for Lung Fibrosis Therapies

Columns, Scleroderma and the Ordinary Girl Graduations, Elephants, and Christmas Blessings

News Rising Healthcare Costs Strain EU Budgets Even as New Therapies Flourish

News Rituximab Stabilizes Blood Circulation in Small Vessels in Systemic Sclerosis Patients, Study Shows

Columns, Living The Dream Christmas Wishes and a New Year to Celebrate

News SSc Patients at Risk of Developing Wrist Nerve Damage, Study Suggests

News Pacemaker May Be Necessary in SSc Patients With Complete Heart Block, Case Report Suggests

Columns, Scleroderma and the Ordinary Girl Silver Bells and Silver Linings

News Fat-targeting Autoantibodies Linked to Increased Risk of Blood Clots, Miscarriage in Scleroderma Patients

News TAK242 Prevents and Reverses Fibrosis in Mice, Could Be Potential Scleroderma Therapy, Study Suggests

Columns, Living The Dream ‘Celebrating’ 20 Years of Being a Patient at the Scleroderma Unit

Columns, Scleroderma and the Ordinary Girl I’m Getting Real About Scleroderma

News Pulmonary Arterial Hypertension Is Main Cause of Death in SSc Patients, According to Study

News High Levels of Pro-Inflammatory CX3CL1 Linked to Lung Fibrosis in Scleroderma Patients

Columns, Scleroderma and the Ordinary Girl My Routines Help Me to Feel in Control Despite ‘Random’ Scleroderma

News Rate of Decline in ILD Better Predicts Survival in SSc than Baseline Severity, Researchers Say

Columns, Living The Dream A Look Back at My Scleroderma Treatments Over the Years

Columns, Scleroderma and the Ordinary Girl This Little Light of Mine

News Non-invasive Ozone Therapy Shows Effectiveness in Treating Digital Ulcers

News FAM111B Gene Mutations Not Associated with Scleroderma, Study Finds

Columns, Scleroderma and the Ordinary Girl There’s a Hole in My Bucket

News Specific Features of Active Disease in Juvenile Localized Scleroderma Identified in Study

News Men at Risk of More Severe and Active Scleroderma at Disease Onset, EUSTAR Study Shows

Columns, Living The Dream Skin Cancer and Other Skin Complications for People with Scleroderma

Columns, Scleroderma and the Ordinary Girl My Scleroderma Sunflower Therapy

News Joint Contractures, Ulcerations, Severe Raynaud’s Linked to Impaired Hand Function in Scleroderma

News New Computer-based Analysis Method Identifies Scleroderma Patients Who May Benefit Most from Stem Cell Transplant

News #NORDSummit – Major Issues on Table for Rare Disease Patients in US as Midterm Elections Approach

News Nrf2 Protein Controls Fibrosis and Autoimmunity in Scleroderma, Study Suggests